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submitted 11 months ago* (last edited 11 months ago) by breeze@lemdro.id to c/privacy@lemmy.ml

(edit: removed redundant rants and added updates)

I recently got diagnosed with a condition (sleep apnea) which means I need to use a machine (CPAP) to have a proper sleep, probably for the rest of my life. The doctor wanted me use the device for a few months, and bring the "report" generated by the device to monitor my progress and discuss further treatment.

I thought it would be a simple task, like using a program or accessing a local network service like a printer would and download a file. However, as I consulted to the device distributors in my area... their sales pitch (disregarding the actual medical functions) were:

A) The machine is constantly connected via wi-fi or cellular to manufacturer's server, and user downloads the report via manufacturer's website or an app.

B) The machine has an SD card slot to which data is copied, but user have to bring its contents to the authorized distributor so they can convert them into a report file.

TL;DR: Very unsatisfied with either options. I never asked for this.

Update #1: For the reports, there's a program called OSCAR (www.sleepfiles.com/OSCAR/) that supports conversion of SD card data. Check device compatibility first. For sleep apnea related discussion, there is a forum (www.apneaboard.com) dedicated to it.

Update #2: From all the available brands, I'm inclined to buy a Chinese brand (Yuwell) simply because of costs alone, even if it is not supported by OSCAR. I see a lot of people recommending ResMed (which has OSCAR support) both online and offline, but the cost is prohibitively expensive for someone in my financial situation with local market prices. Still have to think about it.

Update #3: There's an asshole in the comments arguing "what's so special" about sleep related statistics being copied around. I concern was how those statistics get associated with customer identification (metadata) as distributors often do. Anyways, won't waste my time with the "got nothing to hide" type of dumbfucks.

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[-] WarmSoda@lemm.ee -3 points 11 months ago

What would a hacker even do with it? They would... maybe know how often you stop breathing at night?

[-] rar@discuss.online 5 points 11 months ago

The nature of his medical condition isn't relevant here. It could be his blood pressure, heart beats, whatever that makes an insurance company charge a premium on that poor sucker.

[-] AtariDump@lemmy.world 0 points 11 months ago

It doesn’t log that data.

[-] WarmSoda@lemm.ee -5 points 11 months ago

CPAP machines only do one thing.

[-] rar@discuss.online 2 points 11 months ago

I get your message, but I was not referring to the machine. I was referring that the what kind of data logged by the machine didn't matter in the context of privacy.

[-] WarmSoda@lemm.ee -5 points 11 months ago* (last edited 11 months ago)

The kind of data logged by the machine is how often they stop breathing, and how long they sleep. That's literally all it does.

You can't be concerned about the data it transmits and also say the data it transmits doesn't matter in the context.

[-] breeze@lemdro.id 2 points 11 months ago

It's not the collected data itself that's the problem you dipshit. Don't you know that distributors often make customers sign contracts at lease or purchase for warranty and tie that customer data along with statistics? You must be fun at parties.

[-] WarmSoda@lemm.ee -4 points 11 months ago

I am fun at parties. I actually go to them. And I don't worry about things like how much my freaking CPAP machine is spying on me lmao

[-] breeze@lemdro.id 2 points 11 months ago

No sense talking to a chatbot taking things literally at face value.

[-] WarmSoda@lemm.ee -2 points 11 months ago

That's true, I agree. Not sure what that has to do with anything here but ok.

[-] breeze@lemdro.id 5 points 11 months ago

So what? I post concerns about user privacy on a privacy forum and this is what I get? A gatekeeping comment about how my concerns are overblown? Way to promote the platform.

[-] WarmSoda@lemm.ee -3 points 11 months ago

Ok. What privacy exactly are you concerned with?

this post was submitted on 11 Jan 2024
86 points (93.0% liked)

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