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submitted 11 months ago* (last edited 11 months ago) by breeze@lemdro.id to c/privacy@lemmy.ml

(edit: removed redundant rants and added updates)

I recently got diagnosed with a condition (sleep apnea) which means I need to use a machine (CPAP) to have a proper sleep, probably for the rest of my life. The doctor wanted me use the device for a few months, and bring the "report" generated by the device to monitor my progress and discuss further treatment.

I thought it would be a simple task, like using a program or accessing a local network service like a printer would and download a file. However, as I consulted to the device distributors in my area... their sales pitch (disregarding the actual medical functions) were:

A) The machine is constantly connected via wi-fi or cellular to manufacturer's server, and user downloads the report via manufacturer's website or an app.

B) The machine has an SD card slot to which data is copied, but user have to bring its contents to the authorized distributor so they can convert them into a report file.

TL;DR: Very unsatisfied with either options. I never asked for this.

Update #1: For the reports, there's a program called OSCAR (www.sleepfiles.com/OSCAR/) that supports conversion of SD card data. Check device compatibility first. For sleep apnea related discussion, there is a forum (www.apneaboard.com) dedicated to it.

Update #2: From all the available brands, I'm inclined to buy a Chinese brand (Yuwell) simply because of costs alone, even if it is not supported by OSCAR. I see a lot of people recommending ResMed (which has OSCAR support) both online and offline, but the cost is prohibitively expensive for someone in my financial situation with local market prices. Still have to think about it.

Update #3: There's an asshole in the comments arguing "what's so special" about sleep related statistics being copied around. I concern was how those statistics get associated with customer identification (metadata) as distributors often do. Anyways, won't waste my time with the "got nothing to hide" type of dumbfucks.

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[-] rosco385@lemmyhub.com 5 points 11 months ago

I've used a ResMed Airsense 10 for years now, and I too have always been unhappy with its phone home features, and the way it has limited info for users so they have to go to a provider. I shouldn't have to cough up extra for an appointment to get access to all of MY data from a machine that I OWN.

I would love to find an alternative.

[-] breeze@lemdro.id 3 points 11 months ago

How have been your experiences dealing with the provider? From what I've been asking, the provider "offers" the cloud or report-generating function for the duration of device's warranty. That means acquiring used devices are out of question, at least officially speaking.

this post was submitted on 11 Jan 2024
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