Unfortunately medical care for rare or chronic illnesses involves a lot of barriers, jumping through hoops and waiting. I have been seeking help and answers for a very long time.

I have been seeing specialists and have recently had to change hospitals because I wasn’t getting anywhere with the previous ones and they don’t perform the procedure I now need.

I’m currently being handballed between a private specialist and a public system that is dragging its feet. Even if I convince this doctor and pay out of pocket the earliest I could see him is September. I will also continue to attend the ER to build a relationship with the new hospital and try to expedite things further. (I have an existing referral to their specialists that has already been expedited but I could still be waiting a while.)

I will continue to do my best to get the treatment but it’s likely to be an ongoing struggle and I’m not 100% sure that I will get it soon enough.

Horrible subject. Normally I don’t talk about it. The only reason I even posted is that things are getting serious so I wanted to warn you guys and give you ample time to adjust to the idea if by some chance I don’t make it.